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Insurance Appeals How I forced Aetna to pay for my son

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HomeResources for FamiliesThe Special Needs Mom Life{Insurance Appeals} How I forced Aetna to pay for bracelet homme michel herbelin my son brain surgery.

{Insurance Appeals} How I forced Aetna to pay for my son bracelet homme macrame brain surgery. collier or kenzo Yes, I knew I would. After all, any time I learn something that benefitted my child and could potentially help other children, I want to share the information. Particularly when it comes to navigating a difficult system. And bracelet homme skateur collier or 14 carat insurance and insurance appeals definitely meet the criteria of difficult.

I can believe that it has been just about a year since we won our appeal. I do know that it had an incredible toll on our family and my emotional and physical health. That why I been so slow to not only do this post but get back into gear with all things on the blog and podcast. I was running full throttle for so long, that I just tom hope bracelet homme cuir needed a break. From everything. Sharing what I can for anyone having bracelet homme perle noire tahiti an insurance appeals issue.

A brief history.

I won bore you or invade my son privacy by sharing bracelet homme perles cuir his medical diagnoses and conditions. If you want to skip over this part, just scroll down until you see the heading about Insurance Appeals.

Just know that he has a serious seizure disorder. Way beyond just has epilepsy. Which is serious, I not trying to devaluate anyone experience. But with his condition, more than half of the recorded deaths are from seizures SUDEP tuto bracelet homme macramé or status epilepticus. And, it often takes them at a very young age. It not a kind bijoulia bracelet homme of epilepsy that you learn to live with, it kills you.

You know all those pictures you see on Facebook, kids holding up signs that say months seizure free! Yeah, my kid wasn ever going even 6 minutes without a seizure. Basically, his brain was in a constant state of seizing and recovery. He had stitches multiple times from seizure falls and wore a helmet. He slept about 16+ hours a day because of his bracelet homme maori poor sleep. I often slept with bracelet homme cordon acier him. It helped alleviate my SUDEP fears. It affected every part of our life attending sports events for our other child to canceling family vacations and more. Our situation was dire.

We had been all up and down the east coast. Each neurologist or epileptologist would just shrug and say, always going to have a lot of seizures. That wasn acceptable to me. We couldn live like this. Kevin wouldn live like this.

He tried various medications, every option thrown at us, we tried. (If you email me and ask bracelet homme totem me if I ever heard of cannabis for seizures, I bracelet homme acier gris et noir will hunt you down to punch you in the face.)

I knew of other moms dealing with the same struggle. Both opted for the corpus callosotomy. In one child the CC was completely unsuccessful. In the other child (both were boys Kevin age btw), the mom said, sure, it stopped his drop seizures but he still having 50 other seizures a day. The RNS device.

I was vacuuming my living room and my ear caught part of a segment, something about seizures. When you have a kid like mine, any time you hear anything about seizures, you listen. Because we were desperate. The segment is below.

As you can bracelet homme or luxe see, that video is dated April of 2018. By June, I was sitting in that neurosurgeon office in NYC, pleading our case. And learning. I learned two important things that day. One is that the RNS is only FDA approved for adults, and only for focalized seizures. The other is that I found a neurosurgeon who believed in Kevin and believed graver un bracelet homme that he deserved a chance at better.

By June of 2018, Kevin had an SEEG, by this same neurosurgeon. An SEEG pinpoints where seizures are coming from, in the brain. An EEG is on your scalp. An SEEG is on your brain. They actually drilled 12 holes in K skull. This is how desperate we were. I was allowing, no begging, a neurosurgeon to drill holes in my baby skull…